“Oh, I’m so sorry; you should’ve been born with testicles. It’s probably going to make you pretty bitchy, too.”
Can you imagine someone telling you this? Let alone, hearing it from a healthcare professional, a doctor?
Well, one woman didn’t have to imagine; it actually happened to her. This was what Jennifer, a Washington State-based YouTuber, and meditation and pilates instructor was told by a male gynecologist when she went to him for help with her perimenopause symptoms.
“This is lonely. You struggle. I’m still struggling. That was where my calling came from,” says the military wife and mother of four. “Why didn’t anyone tell me this was going to happen?”
Jennifer, like so many other women, struggled to understand what was happening to her body – and mind – as she progressed through her 40s, the era when the hormonal swings that eventually build up to menopause start to manifest. Now 49 years old, Jennifer recalls her first perimenopausal symptoms beginning around the age of 43 or 44.
“What is wrong with this picture? It’s not right that we have to struggle so much before we get some answers. We’ve come so far in this world, but we’re so far behind in some ways. This should be taught in sex ed, and we should have many options when we go through it,” she recounts with frustration.
One of Jennifer’s first wake-up calls was her poor sleep.
“Sleep was my first indicator. I woke up one day and said, ‘Shit, I haven’t slept great in four years. But I connected it to my children. I always had children in my bed. I had a baby at 40. I thought I wasn’t sleeping because I always had a baby in my bed,” she explains.
The next tell-tale sign were changes with her menstruation. What was once like clockwork began to feel like a broken watch.
“My cycle go wonky. One would be heavy, like from hell. And the next one would be light,” Jennifer says. “The cycles became very short, like 17 days or 19 days – that happened from ages 43-45.”
The cycles became not only unpredictable, but the bleeding was like a levee had been breached and toppled over. So profuse was the flow that it bound her to the house, zapped her of energy and landed her in the ER.
“All of a sudden they started getting really heavy, almost hemorrhaging. I was stuck in the house three or four months before I started figuring something out. I was anemic, tired, couldn’t get up. No sanitary product would work, not even Super Plus. I was literally homebound for weeks and weeks and weeks. I ended up in the hospital, and that at point, they gave me progesterone to help control the bleeding.”
This experience ignited a fire under Jennifer, prompting her to action. Little did she know it would be the beginning of a complex and convoluted journey with the medical system.
“That’s when the fun with the doctors began,” she says.
Her first doctor, a male primary care physician, said she was too young for it to be perimenopause, since she still had periods (yet women still menstruate throughout perimenopause). Then Jennifer remembers she started experiencing her third main symptom, an involuntary attitude shift that affected her relationships. She reported this to the doctor, too.
“Around this time, I also noticed the symptom of not liking my husband, and I felt something was going on. Normally, after my PMS passes, I like my husband again, but this time it was different. The doctor looked at me and said, ‘Well, you’re not in menopause because you’re still getting your period. I’m going to write you a prescription, and get you some Zoloft.’”
Studies show that about 25 percent of all American women in their 40s and 50s are on some sort of antidepressant. Not surprisingly, this uptick in antidepressant prescriptions at this stage of life coincides with the time women are beginning perimenopause and transitioning into full menopause. Jennifer felt intuitively that she wasn’t a textbook depression case and decided not to take the Zoloft. “I knew I wasn’t depressed, and I knew there was something to it.”
She continued to take progesterone to control the bleeding, but it didn’t work as well or for as long as she’d hoped. So another doctor – the fourth by this time – put her on birth control pills. Sometimes doctors prescribe birth pills in lieu of hormone replacement therapy (HRT) as a less expensive stop-gap, one that overrides natural hormones rather than augments them like HRT does. But those proved to be far from the optimal solution.
“Birth control made everything worse – I was more moody and irritable, though it did help with the bleeding and made my periods regular.”
After being on birth control pills for eight months, Jennifer starting feeling sick, with nausea that reminded her of the hyperemesis she endured during pregnancy. By now, she was offered an ablation, which would have presented a surgical remedy to stopping the bleeding, but she decided against that. And then Jennifer found a helpful OB/GYN who suggested the Mirena IUD, which she’s had inserted for about six months without any negative symptoms yet.
Soon after the IUD insertion, Jennifer wanted to address another common problem – her tanking libido. Her diminished sex drive was starting to cause marital friction, so she approached her primary care physician for some help, and she walked away with a prescription for Wellbutrin, an antidepressant now commonly prescribed off label for weight loss, smoking cessation and, yes, sex drive. Like many medications, antidepressants can be prescribed for all sorts of other reasons, including sleep, nerve pain, hot flashes and night sweats, anxiety and migraine headache relief, among others.
“I think Wellbutrin can be a life saver to get a woman back on track and help with the libido,” Jennifer says. “When I was on the birth control pills, I didn’t even want to be touched, by my husband or my children. I would literally be cringing. It was horribly upsetting. I knew I had to do this for my children. I have to be present.”
Still, Jennifer discontinued the Wellbutrin after about six months. She found the initial benefits to her sexual desire and mood declining as time went on, and she didn’t want to end up in a cycle of increasing the dose over and over again to maintain the same effect.
The journey for effective treatment and quality care continues for Jennifer, who plans to seek additional help for her symptoms, especially sex drive and feeling low at times.
“I still feel like we have to get to the root problem, which is imbalance of the hormones,” she says. “I may ask for testosterone supplementation. And I may pursue HRT.”
Though she’s still navigating the medical system and may end up trialing yet more options to treat her symptoms, that hasn’t extinguished the flame for progress in promoting understanding about perimenopause – a passion Jennifer now holds dear. She’s become quite the advocate – adding content that specifically addresses menopause to her YouTube audience of hundreds and educating her children about what this all means. In fact, her kids even help out with her YouTube video production.
“Let me tell you how educated my boys are. I am empowering and educating my boys,” she affirms. “They need to know, and as mothers, we should be teaching our sons and daughters that this is something that will come – just like we tell them puberty is coming.”
Though some days are difficult, and she knows the road forward in her final destination to official menopause may be more years in the making, Jennifer finds moments of joy and humor in all this. For example, one day she overhead her 13-year-old son talking to his 8-year-old brother, saying, “Mom’s having a hard hormonal meno day. She’s going through puberty in reverse.”
Key Tips from Jennifer
Learn for yourself and advocate tirelessly.
“Our providers are not educated, and it’s not their fault. Unless they’re educated as a GYN or take steps to educate themselves, it’s not going to happen. Science hasn’t delved into it enough to figure it out for us.”
Find an outlet for self-care, emotional release and mental clarity.
“Meditation is my saving grace. I’m trying to really share with women that meditation can do wonders as well. To meditate, you don’t need to be spiritual or religious. It’s more about the breathing, the silence and being able to become still, and just focus on yourself – it is self-care. It’s your gift that you can do for yourself.”
Discover the right doctor or care team for you.
“I’ve been through six doctors. Find the doctor who is going to advocate for you, give you that support and help you find what you need. I do think it should be a woman and, more importantly, a woman who has gone through menopause. I am for you firing your doctor and finding one that works for you.”
Jennifer’s Perimenopause and Menopause Videos on her DivineThreeFold YouTube Channel
Symptoms of Menopause: Update on IF and ‘Are You Serious’? Vertigo
The 3 Most Important Tips to Help You Get through Menopause
Symptoms of Menopause – Diet and Exercise
Symptoms of Menopause – IUD for Perimenopause?
Pilates Strength and Stretch for Menopause Symptoms
Symptoms of Menopause: Can You Believe He Said That?
Meditation for Acceptance: For Help with Peri/Post/Menopause Symptoms
Menopause Weight Gain Full Body Workout
Symptoms of Menopause: Why Is No One Talking About It?
10/20/2021 2 Comments
I Participated in the Market Research Study for an Upcoming Menopausal Medication. Here’s What Happened.
I recently volunteered to take part in a market research study for a brand-new development on the horizon for perimenopausal and menopausal symptoms. The upcoming product appears to be a first-in-its-class medication to treat the vasomotor symptoms of this time of hormonal change – vasomotor meaning, in everyday language, hot flashes and night sweats.
I was excited and eager to contribute in some small way to this historic happening in the world of menopausal medicine. As a newly declared perimenopausal woman (who’s likely had symptoms for at least the past two years), I believe that advocacy, information, education and the availability of proven options are paramount for women dealing with the symptoms associated with the drop in estrogen and progesterone – insomnia, first-ever experiences of anxiety or depression, skin changes, potential bone loss and much more.
I am an ardent researcher in matters perimenopause and menopause. I read medical journal articles, clinical trial reports, mass-market stories, medical society websites and personal stories of brave women who’ve spoken openly about their own experience. So when I heard about this market research study being conducted on behalf of a pharmaceutical company, I knew I wanted to help.
So, here are the details, as best as I can divulge.
The name of the company behind this is not clear. The market research interview was performed by a third-party company working with the pharmaceutical company. As a result, I don’t know which pharma company plans to release this new product or when they may do so.
It’s going to address vasomotor symptoms. As the questions continued, it became clear that this new product is one I’ve already read about. It will be a new class of medication focused on treating hot flashes and night sweats in particular. It is a non-hormonal drug called fezolinetant that has either concluded or is in the final stages of pre-market trials.
This is important because, to date, the most common options to treat hot flashes and night sweats are the gold standard, hormone replacement therapy (HRT), followed by antidepressants. Most antidepressants, usually in the SSRI class (but sometimes in the SNRI class, too) are prescribed “off label” for the treatment of hot flashes. “Off label” means that a medication is being used for a clinical purpose other than what it was originally created to treat. Brisdelle ® is the only SSRI antidepressant actually created to treat vasomotor symptoms; indeed it is a low dose (7.5 mg) of the antidepressant Paxil (generic Paroxetine). Other antidepressants commonly offered to treat hot flashes are Celexa (citalopram), Lexapro (escitalopram), Prozac (fluoxetine) and Effexor (venlafaxine).
Some women choose antidepressants over HRT for various reasons, including a personal history of cancer, prior embolisms and outdated and disproven information about the risks of hormone therapy (See WHI Wrong on HRT). At the same time, antidepressants can come with their own side effects – results that for some women are worse than the condition they’re intended to treat. So there is certainly a need for an alternative effective medication.
The pharmaceutical company is trying to get the right language and terminology together. Most of the questions I was asked pertained to certain word choices, phrases and definitions that team must be considering. I was asked to weigh and rank various words, sentences and themes. What I recall most are two things:
It’s not clear if the medication will treat anything other than hot flashes or night sweats. Vasomotor symptoms was the central theme in the market research study. While the interviewer mentioned the impact of hot flashes and night sweats on quality of life, they did not state or imply that the new drug will treat other symptoms like mood changes, hair thinning, skin quality, vaginal dryness or any of the other dozens and dozens of potential perimenopausal and menopausal symptoms. So I think this drug must be laser-focused on night sweats and hot flashes alone. Of course, for some women, remediating those symptoms alone will have a major payoff in everyday life, so I don’t want to discount the benefit.
I bet the medication will be expensive, and most insurance companies won’t cover it. I have little factual basis for my claim here, but with many medications that are new to the market, they are prohibitively expensive for most people. And since they are new, and no generics are yet available, insurance companies may not cover it. Instead, I fear that women will want to try this new medication and won’t be able to because insurance only covers generics and / or they will route the woman to try an existing antidepressant used for that purpose instead. It may take years for the cost to come down or for there to be a widely available generic option.
So these are my takeaways for now. I will likely be part of a follow-up survey and may have even more to say about it as the drug gets ready for its official launch. I am glad there is progress being made in learning more about – and developing solutions for – the symptoms of perimenopause and menopause. By the time my daughters reach this phase of life, hopefully there will be a full menu of hormonal and non-hormonal options for them that they don’t have to fight tooth and nail to access.
10/11/2021 0 Comments
Meditation for Perimenopause?
In online perimenopausal communities, two major camps or philosophies quickly emerge: women who are pro-pharma for the treatment of their symptoms and women who are on the naturopathic path. These two schools of thought each have their own merits, and many women, over time, end up combining modalities once they discover the mix that works best for them.
But what about meditation? It’s often seen as a hocus-pocus, “woo-sah” hobby some people dismiss and make fun of. But when perimenopause strikes, even the most anti-holistic medicine women find themselves turning to it.
In the drive to delay prescribed medical interventions or to incorporate a holistic regimen as part of their perimenopausal game plan, some women meditate to restore a sense of calm to the process. There different types of meditation, such as transcendental meditation, concentrative meditation, mindfulness meditation or progressive relaxation. But meditation is generally defined as “a practice where an individual uses a technique, such as mindfulness, or focusing the mind on a particular object, thought or activity, to train attention and awareness, and achieve a mentally clear and emotionally calm and stable state.”
If the real world and social media are any indication of how perimenopausal women are using meditation, then it appears to be a tactic broadly adopted or, at least, tried. Women seem to use meditation for a number of reasons, many related to mood, as they try to calm anxiety or ease depression. Others test it as a way to relieve physical symptoms, like hot flashes, chills and heart palpitations. And, finally, some women use it as a new lifestyle practice to gain perspective, maintain optimism and boost emotional stability.
But, the real question may be, does it work? Does meditation help? Is it really doing anything?
Axing the Anxious State
It turns out that when it comes to feelings of panic or doom, meditation is a solid tool. According to the University of Washington’s School of Medicine, meditation calms the sympathetic nervous system. This is key because the sympathetic nervous system, when revved up, lends to sensations of fight or flight. They say, “[t]hrough meditation, you are essentially deactivating your sympathetic nervous system and turning on the parasympathetic branch. Initial studies have found that over time this practice can help reduce pain, depression, stress and anxiety.”
This is important, as panic attacks can show up for the first time during perimenopause, when fluctuating hormones take women on a rollercoaster ride. Symptoms of panic attacks include nausea or abdominal distress, chills, hot flushes, rapid heart rate, dizziness, sweating, shortness of breath, chest pain, trembling, sense of losing control, de-realization and a few more (as if these weren’t enough!).
In one study, 56 percent of women surveyed had never experienced panic symptoms prior to perimenopause, and one-third of study participants’ panic disorder symptoms went undiagnosed and untreated.
More than Meets the Mind
Meditation, even short-term stints at it, can have measurable benefits on health. One study from 2009 reported that just five days of meditation at 20 minutes per session improved “physiological reactions in heart rate, respiratory amplitude and skin conductance response.” Brain imaging even showed changes related to emotional regulation.
Additional studies have found that meditation has many other add-on benefits, including delaying brain aging, reducing ruminating thoughts, improving concentration and attention, and even assisting in recovery from substance abuse. Moreover, meditation has been associated with reduced blood pressure, decreased pain and strengthened immune system function.
Worth a Try?
Many of the benefits that meditation allegedly and empirically improves are the very same symptoms women need relief from during perimenopause. Less anxiety? Check. Better focused thinking? Absolutely. Reduced stress and lowered blood pressure? For sure. A regained sense of personal control? Yes.
The problem with meditation, however, may be that it requires a commitment. Sure, some people will feel a difference after just one session. But in order to sustain it, meditation must become a practice – that is, a habit or a routine aspect of daily living. Most sources suggest aiming for 20-30 minutes of meditation a day. Since it can be challenging for women to find that bit of undisrupted time, some suggested time frames to do it are:
How to Find Meditations?
Just as there are many types of yoga (yin, ashtanga, vinyasa, kundalini, and so forth), there are various styles of meditation. Generally two main themes emerge: guided meditation and unguided meditation. In a guided meditation, a speaker sets the tone and verbally walks you through imagery, ideas and themes to reflect and focus on. It may or may not be accompanied by music or nature sounds. In an unguided meditation, there is no one speaking, simply silence or perhaps some accompanying music or sounds to inspire and soothe you.
There are also various types of meditation, often by purpose or topic. Meditations are available on specific themes, like Christianity, relationships, finances, stress and more. And the great thing is, meditation can be obtained for free. A quick YouTube search will unearth more meditations than you’ll ever have time for.
While HeadSpace and Calm are meditation apps popularly used, they come at a cost. Free trials or restricted free access may be available, but the unpaid experience is rather limiting.
Meditations for Menopause
Would you believe it? Yes, there are actually meditations for menopause that some thoughtful creators have put together and made widely available. This isn’t a time to get too wrapped up in particulars though – these meditations are great for perimenopause, too.
Female Hormone Balancer Relaxation Meditation
Guided Meditation for Relieving Menopause Symptoms
Hormone Rebalance Hypnosis
Magical Menopause Full Hypnotherapy Session with Binaural Beats Frequencies
Women of Wisdom Menopause Guided Sleep Meditation
The Real Peri Meno is devoted to all things perimenopause - the science, treatments, care, understanding, personal experiences, relationships, culture and more. The brain child of Keisha D. Edwards, The Real Peri Meno developed out of her own shock-and-awe experience with perimenopause and navigating the disjointed U.S. medical system in search of answers, support and relief.
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